Team Sebastian 2017

We found out when we were pregnant with Sebastian that both Matthew and I carry a gene for cystic fibrosis (CF). Every time we have a child we have a 1 in 4 chance that we both pass that gene on to the baby, and as a result they will have CF. Unfortunately that was the case with our son, Sebastian. Our daughter, Meredith, is only a carrier (like her father, or I). CF is a life shortening, progressive disease that causes persistent lung and sinus infections and various digestive issues. To try to preserve Sebastian's lung function he must spend hours each day doing preventative therapy and treatments. He also has to take medication each time he eats, anywhere from 12-15 pills a day, and that number will continue to go up as he grows. He sees multiple specialists every 3 months and has had upwards of 10 procedures already in his short 18 months of life. There is currently NO cure for cystic fibrosis, and despite the fact that there are roughly 30,000 Americans with the disease, there is NO government funding for research. That means it is up to us, the parents, friends, and family members, to do everything we can to raise funds for the Cystic Fibrosis Foundation. It is OUR money that allows research to continue and to save Sebastian's life, and the lives of countless others.