Easton Scott's Open Heart Surgery

Welcome everyone. I have set up this page for my little man, Easton. I am currently 31 weeks pregnant and just found out our little man will have a tough road ahead if him. I was sent to Winnie Palmer Women's hospital for a routine to check for any signs of Down syndrome or any Trisomy defects. Now I have three perfect children and no history of any type of these diseases so I went in there thinking I was lucky for getting an extra ultrasound. And I was right, there where no signs of any type of defects or signs of any type of syndromes. Then the Doctor came in and continued scanning, where he spent a good 40 minutes just measuring his heart. Now after seeing his perfect little body, I still, in my ignorance, thought this was just a part of the exam. Till he puts a towel on my belly and says he has some bad news. He continues to say he thinks Easton's left side of his heart is abnormally small. In comparison the the right it's barely half it's size. So he referred to me a geneticist and cardiologist and told me to prepare that my son might not be okay. In my blurry state of shock, I walked over to the geneticist who told me all the possible problems that could be related to this type of defect. She said there are two ways to test, an amniocentesis or a regular blood test from my vein. Knowing that the chance for an amino to put me into labor at this point in my pregnancy was about 1 in 200, I opted for a blood test. That's when I went home and prayed. Prayed for negative chromosome tests so that my little man didn't have to face any more problems than this one. And by the grace of God they were all negative. He wasn't missing any chromosome and the possible syndromes they tested for were all negative. The relief I felt was bittersweet. I was so happy to know that besides his heart, he was as perfect as I imagined him to be. Then it was time to see the cardiologist. This was probably the hardest thing I ever had to get ready for. Me and my husband got our babies ready for school, where they all gave little Easton a kiss and a high five for luck and went off without a fuss. We made our slow journey to Arnold Palmer where we sat and prayed. We met our wonderful doctor who performed the echo and explained our results. Results he gave regretfully. Results I wished we would never have to hear. Our son has Hypoplastic left heart syndrome, which on a scale of 1-10 on the worse type of CHD to have, it's a 9-10. A defect that will require surgery within the first 10 days of life. A defect the will require another surgery at 4-6 months and another at 3-5 years. A defect that doesn't have a very bright future. But there was hope. His left side isn't as small as they usually are. It is still pumping, though not enough to sustain life after birth. The doctor explained that the most extensive and life threatening surgery is the 1st one, the Norwood, and as long as he gets through that chances are he'll get through anything. Me and my husband are still trying to cope. Still trying to wrap our minds around having a baby that has to go through so much before he's even a year old. But we have faith. Faith the God wouldn't give is more than we could handle. Faith that our lord will stand by him every step of the way. And faith the everything will work out in the end. I created this page to get his story out there and have as many prayers as we can that he will make is through this. That we as a family will make it through this financially and emotionally. So please, say a prayer for us. I thank you all for taking your time to read this and to pray for my beautiful little boy. I have 9 weeks before he is born and in 10 weeks, he will have a 12 hour surgery to help fix his broken heart. My little man might have half the heart, but I know he will have twice the fight. I love you Easton, we all can't wait to meet you!