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Rayleigh's Move for Medical Treatment
Next Level Jersey T-shirt
- Sizes YXS - XXXL
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About this campaign
Rayleigh is almost 4 years old and has a very rare genetic disorder called CDKL5. CDKL5 causes intractable epilepsy. Rayleigh has seizures every single day. We need to move her to CO for medical treatment and could use your help getting there - while spreading awareness, too!
Shirts will be delivered approximately 2 weeks after the close date.
Rayleigh began having seizures when she was only 2 weeks old. She has tried 11 different medications, the restrictive Ketogenic Diet, and the surgically implanted Vagus Nerve Stimulator. Unfortunately, these have not helped her become seizure free. BUT there is hope! There is a specific strain of medical cannabis that can stop her seizures and heal her brain (without getting her high). This treatment is not legal in Oklahoma so we must move to Colorado soon to save our daughter.
You can follow Rayleigh's journey through my blog and click here to watch a recent story we did with News 9 regarding the medical treatment Rayleigh needs.
Rayleigh needs this treatment, and we need to move to get it for her. Also, we recently learned that Rayleigh's medical cannabis will cost us approx. $200 a month out-of-pocket for the full dose at her current weight. We could really use your help to get this for her!
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Best wishes to you and your family.