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pitt hopkins fierce

pitt hopkins fierce Fundraiser - unisex shirt design - back

pitt hopkins fierce shirt design - zoomed

Canvas Long Sleeve Raglan

Sizes S - XXL
View Sizing Guide

Help us raise 10K for Pitt Hopkins Research! Every $$$ is doubled by UPENN CENTER FOR RARE DISEASE!!

All funds raised will go directly to PITT HOPKINS RESEARCH FOUNDATION

$260 raised

32 items sold of

50 goal

Thanks to our supporters!

$22

Canvas Long Sleeve Raglan, Unisex - Deep Heather / Cardinal

Canvas Long Sleeve Raglan

Unisex - Deep Heather / Cardinal

About this campaign

WHY THIS RIDE IS A BIG DEAL FOR US
The Penn Medicine Center for Orphan Disease Research and Therapy (CODRT) is sponsoring this race to raise money for research in rare diseases such as Pitt Hopkins, and they will MATCH EVERY DOLLAR DONATED!! (up to $50,000) Please consider donating to our cause and being a part of transformative research. 100% of your donation will go towards research!
LIKE THIS DESIGN...CHECK OUT OUR OTHERS!

http://booster.com/rideforhope
http://booster.com/pthsrideforhope

What is Pitt Hopkins?
Pitt Hopkins is a rare and severe neuro-developmental disorder caused by a mutation of the TCF4 gene on the 18th chromosome. It is characterized by profound developmental delays, problems with motor coordination (ataxia) and balance, breathing abnormalities, seizures and severe intellectual disability. Most individuals with Pitt Hopkins do not develop functional speech. Pitt Hopkins affects all races and both genders equally.

Since the gene that causes Pitt Hopkins was only found in 2007, currently there are less than 350 children in the world diagnosed with this syndrome, however we believe there are many more.

OUR RESEARCH

Every cent that Pitt Hopkins Research Foundation goes to the research- and this is important: the research is truly cutting edge, and if you know anyone with ALS, Alzheimer's or Autism, then this is of interest because single gene disorders like Pitt Hopkins (where the cause has been identified) is one of science's best hopes for finding treatment for other genetically caused syndromes. This research affects us all.

Supporters

Maia ginnelly 3 items

for michael

Audrey Davidow 1 item

Charles Tennesen 1 item

Anonymous 1 item

Alyssa 1 item + $25

I work with the most amazing family whose son has Pitt Hopkins. He is a superhero and I would love nothing more than to support this beautiful cause :)

Brian D. 1 item

My cousin Stacy is one of those affected. Anything helps to raise awareness!!

Jessica Fletcher 1 item

For Ian and all his PTHS brothers and sisters :)

Stacey Dull 3 items

Gordy & Amy Poole 2 items + $50

Go Team PTHS!!!

Zach 1 item

For my daughter

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