Faith, Hope, Love, are all greater than EB

My son Nicky was born with the Recessive Dystrophic form of Epidermolysis Bullosa, also called EB in 1996. This genetic condition causes the skin to blister at even the slightest amount of rubbing or friction. Individuals with EB are often compared to butterflies because their skin is as fragile as a butterfly's wings. Nicky has a more severe case of this disorder, and he is in a great deal of pain every day, but he always stays positive. There is quite a few things that are not covered by insurance which over the years led us to two bankruptcies. Help us spread awareness for this rare condition and help Nicky fight EB!