Naomi's Minions: Great Strides Cystic Fibrosis Fundraiser

To sign up to walk with us in the Great Strides Tulsa Event as we celebrate Naomi's first birthday: http://cffh.convio.net/goto/NaomisMinions

We prayed for a long time to have a baby.  Once we learned we were pregnant we did all the prenatal care and were told everything was going great.  The day arrived to have our baby; she was born with a swollen abdomen (which we later leaned was meconium ileus), was immediately taken for tests and transported to another hospital with a NICU.  We held her for the first time for five minutes when she was two days old.

Naomi spent the first 130 days of her life in the NICU; she had three surgeries, multiple procedures and many ups and downs as she struggled to gain weight and overcome many of the challenges of Cystic Fibrosis.  At discharge she had not yet gained a full pound from her birth weight.  

Four months after NICU discharge she has more than doubled her original birth weight, spent an additional 11 days in the children's hospital and continues to take several different medications as well as breathing treatments and chest percussion therapy daily. Please join us in raising awareness and funds for Cystic Fibrosis so a cure can be found, not just for Naomi, but for the approximately 30,000 others that daily struggle with Cystic Fibrosis.