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Living LFS Have You Hugged a MUTANT Today?
Gildan 50/50 T-shirt
- Sizes YXS - XXXXXL
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About this campaign
Li Fraumeni Syndrome is a hereditary cancer syndrome. Living LFS is a newly formed organization that aims to provide support and information to those with LFS. We want to help mutants get together, share their stories and help each other find the best resources to LIVE with LFS. We are organizing a Meeting in Portland, Oregon in October and funds will go directly towards providing a space for mutants to gather and find community. Our vision is to have meetings in many different locations and enough financial support to make meeting other mutants easier on this already physically and financially challenged population.
Living LFS is a group of mutants who met in a Facebook Support Group online and found a sense of community and understanding none of them had ever experienced before. With more cancers than they could count between them and a whole lot of snark- they finally got to meet in Boston in 2013. Together, they are trying to help fill various needs of support and awareness that is so direly needed in the LFS community. We want to bring mutants together to share their stories, increase the awareness of LFS so that mutants can get better screening and treatment and ultimately fund research that will put more LIVING in LivingLFS.http://livinglfs.org/
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Share Why You Support "Living LFS Have You Hugged a MUTANT Today?"
Supporters
In support of Trish & Tre
I have LFS and want to help others that are diagnosed with it.