Laps for Levi Cystic Fibrosis Walk T-Shirt Sales

In February 2014, we welcomed a very healthy baby boy into our lives.He was absolutely perfect. When Levi was just eight days old, a day after receiving a clean bill of health at his one week check up, we received a call from our pediatrician, who told us that Levi's newborn screening (routine blood draw taken while he was still in the hospital) indicated he needed further testing to rule out cystic fibrosis. After testing and two agonizing weeks of worry, Levi was diagnosed with CF at three weeks of age. While it was heart breaking news to receive, we are very thankful for the CF Foundation for implementing programs like newborn screening, which identified our son's CF well before he showed symptoms. Because he was diagnosed so young, we are able to be very proactive with his care. Today, he is a very happy, chunky one yearold. He looks and acts like other babies, but takes enzymes to help him absorb his food, takes inhaled breathing treatments2-4 timesa day to keep his lungs clear, and takes vitamin, salt and acid reflux medicine every day. As he grows older, his routine will include additional medicines. CF is a progressive disease, so we don't know what to expect, other than tohavefaith that by supporting the CF Foundation,Levi will have the drugs he needs to have a full, active life.His care takes extra work on our part, and it's definitely an emotional struggle,but we are SO THANKFUL for the CF Foundation for the advancements made in CF care that are keeping Levi healthy.He is perfect.Let's find him a cure. By purchasing a T-shirt, you are helping us raise funds to beat CF.