Hope For Jocelyn

Jocelyn's journey began when she was born 3 months early, weighing in at only 1 pound 13 ounces. From the time she was born she has been a fighter, at only a couple hours old she had neck in her intestines and had to have half of her intestines and bowel removed. She spent the first 4 1/2 months of her life in the NICU at Bryn Mar Hospital getting intravenously fed and closely watched by many doctors. At the age of 2 Jocelyn was first diagnosed with pancreatic blastoma and underwent a 12 hour whipple procedure. She relapsed 5 times and now has tumors in the pancreas,liver, and brain. Jocelyn has went through chemotherapy, radiation, and surgeries to have the tumors removed. She has also developed blood clots and now is on a blood thinner and has to wear a garment on her arm. Jocelyn also has a straight j-tube she is fed through that for 20 hours a day and she also has a g-tube to decompress and vent her stomach she struggles with stomach pain daily as well she can only eat stuff that melts in her mouth due to aspirating and she doesn't have the enzymes in her body to break down and to digest food it just gets stuck in her esophagus and lays in her stomach and turns to bacteria and poisons her body that's why Jocelyn is 100% tube fed she also has something called refeeding syndrome . Jocelyn is hypoglycemia and hyperglycemia she struggles with sugar issues daily and we are still fighting for a plan because Jocelyn cannot do anything that involves activity without her sugar dropping dangerously low. She follows many doctors at CHOP and spends a lot of time at the hospital. She is now 16 years old and still fighting, Jocelyn is an inspiration to many people !