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LV Leukocytoclastic Vasculitis Disease
Spirit Rally Towel
- Sizes One Size
About this campaign
Edward found out he has an incurable rare disease called LV about one year ago. We would like to raise money for his medical bills as well as spread awareness of LV.
In addition to the typical problems caused by LV, Edward is going in for brain surgery for two tumors that may be related. Brain surgery can cost up to $300,000, in addition to the cost of chemotherapy post-surgery, so raising money to help offset these costs is very important to us.
If we reach 250 towels sold we will earn $7,345. All funds raised will go directly to Edward DeLaura. Towels will be delivered approximately 2 weeks after the close date.
Please contact the Campaign Organizer, Victoria Mincello , with any questions.
INTERNATIONAL PURCHASERS: Please contact Victoria so she can assist you with purchasing your towels and arranging shipment to your location.
My boyfriend was a lacrosse player/student at Stony brook University. He was playing in leagues until over a year ago when he was diagnosed with LV.
It all started a little over a year ago...up until this point Edward was still playing on lacrosse leagues with other alumni from Stony Brook University. Out of the blue he started to get very sick - his muscles tensing up and his joints hurting extremely badly. he also was getting spots all over his body and in places where it was really bad they would turn black and start to fall off. One day he was getting the chills extremely bad and started to go in and out of consciousness. I took him to Yale New Haven hospital because we were not on long island for me to take him to a medical facility on the island. he actually ended up in a coma and in this time frame he was diagnosed with an autoimmune disease called Leukocytoclastic Vasculitis and they also found a tumor in his brain. We have been dealing with flare ups and watching the tumor in his brain for any significant changes...well just over 1 1/2 months ago I found him on the floor in our home and needed to have an ambulance take him to the nearest hospital. after this stay we found out he had another flare up with the autoimmune disease which by the way there is no cure for. His doctors at Yale New Haven Hospital wanted us to get another MRI of his brain and total spine. This past MRI/CAT scan showed us that he now had another tumor and in less then a month was told he needs immediate brain surgery of the one tumor to find out what and how to deal with the second one. the second tumor is too deep in his brain for the doctors to remove it. he is going in for surgery on September 5 2013 at Yale New Haven Hospital. We have been completely overwhelmed as you can imagine. We have no idea how long he will be out of work and with the two of us running it will not be operating until he returns. Please help if you can. This is a very rare disease also known as an "orphan disease" meaning very rare...please help all money will go towards help with medical bills and with help to educate hospitals /medical facilities about the disease so they will be able to help patients.
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