A House For Wyatt Tee Campaign

A bit about Wyatt.....
When Wyatt was not meeting typical baby milestones like crawling and babbling by 9 months old, his parents Amy and Jason knew answers were needed. Several blood tests later revealed MECP2 Duplication Syndrome, a severe neurodevelopmental disorder characterized by low muscle tone, little or no speech, progressive muscle spasticity, recurrent respiratory infections and seizures. The syndrome affects mostly boys with survival generally to their 20s.
Wyatt was a very happy mischievous toddler. He was mobile with his walker and eating soft solids by 3 years old. He was working using pec cards and the IPad to communicate. Then April 2010, neurological changes typical in the syndrome occurred and the battle against seizures and respiratory infections began.
Shortly thereafter, he stopped eating and has become fully supported by 15 hour long GJ tube feedings. He also stopped walking. Today at almost 7 years old, he still experiences 5-14 seizures daily even with the four medications used to try and prevent them. He is unable to sit, walk or roll unassisted. He communicates with head turns, eye gaze and vocalized sounds. In 2012, he spent six separate week long visits in the hospital due to pneumonia and other respiratory complications. In November 2012 a trach was placed to increase his comfort during these stays. Thankfully, his trach has kept him out of the hospital and much more comfortable during illnesses for the last 17 months.
Due to the nature of Wyatt's conditions, he receives around the clock home nursing care. A nurse or parent is always at his side tending to his needs. His "room" is similar to those in a hospital. Medical equipment used for his care include an oxygen concentrator and portable tanks, trach collar humidifier, wheelchair, commode/shower chair, a stander, and boxes of supplies like diapers, gauze pads, feeding formula, breathing treatment ampules, and the list goes on. Remodeling details.....
About a year ago, Jason and Amy decided it was time to remodel the downstairs bathroom used for Wyatt's care. The current door frame doesn't allow the wheelchair to pass through and the shower is not large enough for a tilting shower chair. His toileting and bathing routine have become difficult and transferring him is teetering on unsafe. A local contractor came by to give a bid on the bathroom. Amy had always envisioned an open floor plan allowing her to see Wyatt from any of the family areas downstairs. She also wanted him to enjoy time with his family without barriers. His hospital bed and current care space are located in the downstairs "formal sitting" room in the 1960s era home separated from the other family areas by narrow doorways. Every line of sight into his "room" are blocked by walls. The current doorways and exit to garage and van are positioned awkwardly and too narrow for his growing size. She knew it would require a much larger remodeling project and price tag to fulfill this wish. She mentioned these thoughts to the contractor. Several days later the contractor contacted her and due to his generous nature and by the grace of God he said he wanted to help. He was willing to forgo his standard contractor fees. He planned to get community involvement in raising funds for the project and they have been very supportive. In addition he was able to get many of the subcontractors and local businesses to donate time or materials.
The project is due to start June 1st. The necessary funds for the entire remodeling plan are yet to be met. We are asking for your help to get Wyatt's House fully accessible and suited for his needs.