Aelycia's medical cause and care

Cornelia de Lange syndrome is when two genes fuse together. It happens in approximately 1 in 10,000 births. It is some times detected at birth but in some cases isn't detected until later in life. We are just trying to spread awareness. As a single mother it is difficult to go in to this alone. I can't imagine what it's like for parents with kids with CdLS that are in a more severe state. I hope you can help us spread awareness here in Washington state. I would like to donate the money to Aelycia's medical care and gas to my family for supporting Aelycia and I by driving her to the local hospital. Thank you