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Seizure Assistance Dog for Aria

Organized by Lauren Michelle Marcheskie
Front large extended
Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - front
Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - back
Seizure Assistance Dog for Aria shirt design - zoomed
Seizure Assistance Dog for Aria shirt design - zoomed
Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - front
Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - back
Seizure Assistance Dog for Aria shirt design - zoomed
Seizure Assistance Dog for Aria shirt design - zoomed
Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - front
Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - back
Seizure Assistance Dog for Aria shirt design - zoomed
Seizure Assistance Dog for Aria shirt design - zoomed
Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - front
Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - back
Seizure Assistance Dog for Aria shirt design - zoomed
Seizure Assistance Dog for Aria shirt design - zoomed
Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - front
Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - back
Seizure Assistance Dog for Aria shirt design - zoomed
Seizure Assistance Dog for Aria shirt design - zoomed
Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - front
Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - back
Seizure Assistance Dog for Aria shirt design - zoomed
Seizure Assistance Dog for Aria shirt design - zoomed
Hanes Tagless T-shirt

Buy a shirt today to help Aria get a Seizure Assistance Dog by the Summer!

Custom Ink
All funds raised will be paid directly to Sherlock Obedience and Assistance Dog Training for Seizure Assistance Dog.
$2,390 raised
63 items sold of
500 goal
Thanks to our supporters!
$20
Hanes Tagless T-shirt, Unisex Short Sleeve
Hanes Tagless T-shirt
Unisex Short Sleeve
  • Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - small
  • Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - small
  • Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - small
  • Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - small
  • Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - small
  • Seizure Assistance Dog for Aria Fundraiser - unisex shirt design - small
Organized by Lauren Michelle Marcheskie

About this campaign

We need to sell about 800 T-shirts to reach our goal of $16,000!

Epilepsy is the least funded, least researched, and least understood neurological disorder, yet it plagues the lives of 1 in 26 people.

We've created this booster to help raise funds for a service dog for our daughter, Aria. Aria has seizures every day, even in her sleep, and the frequency of seizures prevents her from being able to attend daycare, and being able to free play and socialize with her peers. I had left my job shortly after Aria's diagnoses, when the daycare she was in was unable to meet her medical requirements. Aria has been through five different anti-epileptic medications, and two brain surgeries, and she still has seizures every day- they’re significantly less in numbers though. Aria also has a field cut to her vision, in the upper left quadrant of both eyes. She’s been receiving vision therapy and occupational motor therapy, and since coming off some of the heavy medicines, she has been doing great at navigating her environment and acknowledging that upper left side of the world. She has the most issues with her vision and depth perception outside, where there’s a lot of glare, and in new environments. Both her vision impairment and seizure disorder are our reasons for wanting to get a service dog for Aria. At home, I've found it difficult juggling Aria’s care and development, tracking seizure activity and possible triggers, and getting housework done. I need to keep a close eye on Aria, her seizures can be every 5-10 minutes, or every hour, it’s unpredictable, and I need to be able to guide her from danger when a seizure occurs. Most days I find myself just watching her, afraid to turn my back, because I don’t know when it’s going to happen, and if she might fall over. Those are the days we have a lot of one on one pretend play, and I can’t say I don’t love it.
A Seizure Assistance Dog can help with all of the this! A seizure assistance dog, through Sherlock Obedience & Assistance Dog Training, is trained in-home to respond to Aria's seizures and alert me, even if I'm n another rm. Thebenefit f in-ho training s that it aclerate the bond bween te handler a the dg, and the dog can even learn to alert to seizures BEFORE they happen. The dog would be trained to walk on her left side, so as to guide her away from obstacles she may not see, like a table to at head level. Aria would receive a service dog who has already gone through obedience training, and has been registered as a service dog. The trainer will come to our home, and work with us in-home, and in public. Having the service dog will free me up a little bit to be abl to compete some work without constantly looking over my shoulder If I ha to runo the athroom, or wash dishes, the dog can alert me to a seizure and guide her from danger until I return, and offer comfort and stability afterwards. As she gets older, the dog will be able to give her more independence and confidence in herself, while providing seizure safety. Aria will always have epilepsy, and always be at risk for seizures, a seizure assistance dog can stay at her side and warn her, and help keep her safe.


Family photo jpg
Aria was diagnosed with intractable epilepsy at 6 weeks of age. Despite medications, she was having 60+ seizures a day. The frequency of seizures and high strength medications hindered her development and prevented her from starting daycare. Aria's mom, Lauren, quit her full-time job to stay home and provide the care Aria needed, while Aria’s dad, Ian, continued to work full-time and a side job to support the family. After multiple medication adjustments, Aria reached a seizure free period during the summer of 2014; things were looking up. However, in December of 2014, a year after Aria was diagnosed, her seizure free streak ended. On January 28th, Aria began having 30+ seizures a day, and we started seeing the physical and mntal effectsfrom the seiures and medications. With the seizure breakthrough came more medications changes, and with a fourth medication added, her seizures were reduced to 1-3 a day. Unable to get her seizures under control, the next step was clear: brain surgery. Past tests showed that Aria's seizures came from a specific area of the brain, which meant that removing that area could bring her seizure freedom, or a reduction in activity. After three grueling months (July, Aug, Sept '15), and four surgeries, Aria had 42 days of seizure freedom, before they slowly started to return. Based on post-op MRIs, EEGs, as well as an EEG with her off the medications post-op, we've concluded that the seizures are also generating deeper in her brain, too deep to determine an exact location. Aria is now missing her right temporal lobe, some of the right occipital lobe, and the hippocampus. The side effects from this surgery affected her vision, she lost the upper left quadrant. Because Aria is so young, there is a chance that her brain could rewire itself and she could regain some, if not all, the vision lost. At four months post-op we decided it was time to reduce the amount of pharmaceuticals Aria was taking and take a more natural route for treatment, in an attempt to improve her quality of life. Being only on a low dose of one anti-epileptic medication, and beginning a modified epilepsy diet, Aria is having nearly 20+ seizures a day, which is significantly less than what she was having on medications prior to surgery. We are still in the beginning stages of this new treatment, and it takes a while for the body to adjust and see results. Despite the lack of seizure control in the current moment, without the heavy medications Aria has been able to catch up developmentally, and excel in certain areas. We’re even going to be starting potty training, which is a big accomplishment to just be able to start! Aria has been a ray of hope, despite her disability, and all she’s been through.
You can read Aria's story in full here:
https://www.hashtagteamaria.tumblr.com/
You can learn more about the many forms of epilepsy, and seizure safety here: https://www.epilepsy.com/
You can learn about the diet Aria has started here:
http://dogtorj.com/the-g-a-r-d-made-simple/
http://drlwilson.com/Articles/epilepsy.htm
http://www.truthinlabeling.org/



Supporters

Ryan Pickard 1 item
Anonymous 3 items
Uncle B's BBQ 2 items

So excited to see the progress Aria has been making!

Anonymous 2 items
Carlos A 1 item + $105

I feel led to donate.

Brenda Pickard 1 item

We are here to support you! Love Mom

Esther Dietrich 3 items

All the best to you "SUPER MOM"!! Love Grandma, Grandpa & Aunt Rosie

Garry & Courtney Schmoltze 1 item + $12
Jacob, Greg's buddy 2 items

Because I care about Greg, and therefore I care about his family. He's been keeping me updated on Aria's status and I'm happy to be able to support the cause. Let's get that puppy!!

Joshua Mitchell 1 item + $50

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