Madison's Heart Journey T-shirt Drive

Madison was born with a very complex CHD called Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, as well as a double Aortic Arch. She also has been diagnosed with a genetic disorder called 22q deletion, also known as DiGeorge Syndrome. She has been through multiple surgeries including her open heart surgery on March 19th, 2014. Her condition also has required surgery to insert a G-tube for feeding issues. In the near future, she will continue to require multiple therapies to assist in feeding and developmental delays associated with 22q. We will also need to do another surgery to repair her cleft palate. She has been an amazing example of strength. Our family is very grateful for all of the love and support that has been given to us.
We will use any money that has been raised and/or donated to help with all of the medical and travel expenses related to her.